Thursday, November 6, 2014

McCrady Manor: Blood Curse - Chapter One

CHAPTER ONE
 August 1

     She lay on the couch looking out the door to her best friend's cabin.  The identical cabin sat directly across a small dirt road from her's.  She watched Leigha's door, waiting for her to leave.  Leigha would be leaving soon, to go work at the mansion.
          She shifted her body and looked at the ceiling.  It was three months ago that it had happened.  Three months to the day.  "May first," she uttered aloud.  "I want to forget." She almost cried to herself wishing the past moments away.
          As she tried to push the memories back...the images formed stronger.... so clear that she couldn't ignore it...

          The blazing bon fire loomed up before her...before them all.  Almost one hundred people were gathered on the beach dancing around.  Some were drinking, but she sat with a soda in her hand, always the responsible one.  She had never had a drink in her life.  It just didn't interest her. 
          She just sat there watching the bon fire.  She watched as the small embers would break away from the flaming wood and fall onto the sand or into the lake.  She felt as if nothing in her life would be the same after this night.  As if nothing would be solved.  Yet, she knew that she would survive and that she would go on. Yet the feeling she had seemed more then upcoming change.  It seemed more then normal nerves.  It almost seemed, dangerous.
          Everyone was celebrating a job well done.  They had all been working so hard for the past few months, some for a year, preparing Clear Water Estate to be opened up for the public.  Fixing up the old house that was called McCrady Manor.  Restoring the inside and out to it's past glory, with some modern additions and making it completely safe again.  They tried to keep everything they could, and reproduced what they couldn't, to what it had been.
          Nathaniel McCrady, his wife Paige, and son Austin lived in another house on the land called Bell Manor.  Nate had decided to set McCrady Manor up as a museum for a trial season.  The big house was just sitting empty, and the county seemed so interested in it.  Rarely were people allowed in it.  As it had been rumored to be haunted.  They also fixed up the massive land, so that the visitors could explore and enjoy its glory.
          In the next couple days they would open the massive iron gates, at the front of the driveway, to the public.  Then those hired as guides would tell the visitors all about the history of the land and the McCrady family.  The guests would see the beautiful house and land and be amazed.  It was so breathtaking.  She had been living there for a while and the beauty still blew her away.  She thought about the house for a moment, she had seen a few of the changes, like a new birth.
          The house stood a wondrous five stories high, and one low.  All six levels had been revived to its original grandeur. The Queen Anne Victorian style home was started in 1876 and finished in 1878.   Nathaniel McCrady Jr., his wife Rebecca, and their three children oversaw the building of the house.  Before the house was complete, his wife and daughters met tragic deaths.  Many of the attractions of the house had never been seen in their parts prior to the building of the manor.  The 13-foot ceiling in the main hall.  The front entrance with a double entrance, the inside doors showcased elaborate stain glassed windows, as did other areas in the house.  The mosaic tiling held the word McCrady amidst it's complicated design.  The large spacious rooms holding beautiful woodwork, sparkling chandeliers, specially made moldings, and beautiful art pieces including massive fireplaces shipped in from other countries. The land was as magnificent as the charming yet impressive house.  Filled with archers of green grass, stables, a gazebo, beachfront, forest, a rumored church and graveyard, and a massive English style hedge maze. There were also the two other houses on the land, Bell Manor, and Harmony Manor, which stood in destruction after a fire in 1915.  Also the employee quarters, which was a lane of cabins available to the long-term employees, which use to be the servants quarters.
          Most of the people who had worked so hard would have to leave within the next few days.  Only a few would stay behind to continue the work, and she was one of them.  Feeling so happy about it, since she no longer felt at home, anyplace but here.
          She made some new friends and knew that a couple of them would be staying. Most everyone had taken on their job here to help them through college.  Some were just interested in history.  Most of them, it was something interesting to do in-between and after classes.  For her, it was a job she was enjoying that she needed.  She had nowhere else to go, nothing else to do.  She loved to write, but couldn’t at the moment.  Her flame for writing had been blown out about a year before. Someday she would start again. 
          Right now, what she wondered was if the guy she liked would be staying.  His name was Macen Haskelway.  He was sweet and kind.  He always made her laugh.  With his dark hair, gentle blue eyes, and a kind smile.  He stood about 5'11 to Meghan's 5'5, but it was a nice balance.  He inspired to become a police officer, which she respected, had been taking his classes he needed to fulfill the dream.  It was admirable in her eyes.  Macen seemed a lot more sensitive than his identical twin brother, Codie.  Though Codie was the one who seemed interested in her.  Not Macen.  Which just confused her how she could be attracted to one, and not the other.  She tried to be friends with Codie, but something inside her, seemed to ward him off.
          Just as she had finished that thought she realized that Codie was standing over her, watching her daydream in the darkness.  He asked her to take a walk with him around the land...suggesting a stroll through old maze.  She figured that it wouldn't hurt...but what she would soon find out was that it would.

          "Meg!"  Someone shouted from her door bringing her back to reality.  She heard her screen door open and looked up to find Leigha.  "Where the heck were you?  La--La Land?"  She joked.
          "No, I'm just tired," she whispered as she sat up.  "Aren’t you going to be late?"
          "Not yet, but I will be if I don't leave in the next five minutes."  She smiled.  Leigha had a big beautiful smile.  It made her even prettier than her long red hair and her large violet eyes did alone.  "I need caffeine and I drank my last can of soda last night when Alec came over to watch movies.  Do you have any?"
          "Yeah, help yourself.  There are some cold cans in the refrigerator.  It's the cheap stuff, but it works," she answered.
          "Great I'll get you some more when I go grocery shopping tonight.  Okay?"  Leigha said as she walked into the kitchen.
          "Don't worry about it," she muttered.
          Leigha walked back out into the living room with a can of cola. She stopped in front of her friend before leaving.  "You don't look so good, are you okay?"
          She shook her head.  "No," she moaned.  "I think I'm coming down with the flu or something.  I got up this morning, ate, and it all came right back up. Plus I've been real tired the last few days."
          "Do you work today?"  Leigha asked.  She shook her head.  "Good, get some rest then.  I'll stop by after I'm done with work and see how you're doing."  Then Leigha waved good-bye and left, walking down the dirt road towards the main part of the property.
          As soon as Leigha left...her memories returned.

          It was dark as they walked into the beginning of the maze.  There was no moon that night and the stars weren't very bright.  A dark curtain seemed to be upon them.
          She hadn't been in the maze before so she had to trust Codie's leading.
          As he took her deeper into the tall hedges, and as she became lost and confused, his mood changed.  Suddenly, he pushed her up against the hedge wall and started to kiss her. She pushed at him and tried to tell him she didn't like him like that, but he kept coming, and had her pinned.  She tried to get away from him, to scream, to kick, but he covered her mouth with his and started moving his hands inside her clothes.  He was very strong and she could not move.  He slid his hand across her mouth as his kiss ended.  "You're mine, Meghan Quinn.  Mine.  I'm gonna take you places that you've never been and you will enjoy it.  No matter what you do."  A big smile spread across his face.  "You can't stop me.  Everyone is on the beach and no one will hear your screams.  So go ahead and scream all you want."
          He uncovered her mouth and ripped off her T-shirt.  Her bra followed and he started to touch her.  Then her shorts and underwear were off before she knew the difference.  The whole time she was trying her hardest to fight him, and the urgent need to pass out.
          He pushed her to the ground and started removing his clothes.  She tried to get up but he bent over and picked up a stone about the same size as his fist.  "Lay down or you will regret it," he threatened, holding the rock over her.  All her kicks and punches seemed to do nothing.
          "Why are you doing this?" she managed to question.  Her breath was ragged and burning in her throat.
          "You're mine.  That simple."
          "No, I'm not," she said and started to raise her head up.  She felt the stone hit the side of her skull.  The sharp pain made her dizzy and her head fell back down to the ground.  Warm liquid started to drip down her face and she looked to find the blood forming a small puddle around her.  She looked up at him and her head began to spin wickedly. His sick smirking smile was the only thing she could see.  Then everything went black as she felt another sharp pain in her head.  Soon, though, it was numbed, as she was lost in all darkness.
          She couldn't remember anything after that until she opened her eyes to find those of her attacker staring back.  "Calm down, Meggie," he whispered.  Macen was the only one who called her Meggie.  She searched his face for the one difference that Codie and Macen had, a mole on Macen's left temple.  Codie had it removed.  His had been on the right side.  They were mirror image twins.  When she saw the mole, she felt so much relief.  "Are you okay?" he asked.
          She couldn't say no, all she could manage to do was cry.  "Don't tell anyone," she pleaded.  "Please, I don't want anyone to know."
          "Meggie," Macen said with a strong accusing tone, "What did he do to you?"
          She looked up out of shock.  "You saw?"
          "I saw Codie running from here.  Before, I saw him leave with you from the beach.  I grabbed the blanket that we were all sitting on and came out here.  Did he..." Macen closed his eyes.  "Did he touch you?"
          She looked down and found the blanket wrapped around her.  She could also see that her clothes were spread out between the two hedge walls.  She couldn't do anything but nod.
          "That bastard!  I am going to...fucking kill him!"  He grabbed a stone from the ground and got ready to throw it, but stopped with it over his head.  He brought it down by his face and looked at it.  He could see the blood on it.  The blood he was touching with his hand.  "He hit you with this, didn't he?"  He watched as she nodded.  "Meggie, I am so sorry."  He dropped the rock and picked up her scattered clothes.  Then he grabbed her arm gently and helped her up.  "I'm taking you home.  Then we are going to the hospital."
          "No," she begged.  "Please, I am already...so...humiliated."
          "Did he rape you?"  Macen asked.
          Her body was shaking and her heart racing.  She was so sore she didn't know if her body had been invaded or not.  "I don't know,” was all she could manage to mutter.

          "Meggie," she heard bringing her back from her memory.  She saw Macen peering down at her.  She also felt something wet and cold against her forehead.  "How are you feeling?" he asked moving the washcloth off her face.
          "I remembered...it came back again," she whispered choking back the tears.  "Codie...everything.  Why does it keep doing this...why do the memories keep coming back?"  He gathered her into his arms and held her there and she cried. 
          "Honey," he whispered softly.  "They come because they are part of your life, now, sweetheart.  And if I could change it I would."  He smiled at her.  Ever since that night, three months ago, he had been by her side every step of the way.  They had become very close.  More so than just friends, now.  "If it had been me...I would have been gentler and we would have waited until you were ready.  I swear it, Meg.  I'd turn back the hands of time if I could.  I hate seeing you hurt like this."  He paused.  "When I stopped in at the mansion Leigh said that you weren't feeling well.  What's wrong?  Do you have a tummy ache?" He asked in a childish voice trying to cheer her up.
          "Do you really want to know my symptoms, Doctor Haskelway?"  He nodded smiling.  "Let's see...I am extremely tired.  I'm nauseated and vomiting.  I'm not really hungry.  I have a small headache.  I am dizzy, crabby, and my jeans are tight."
          Macen couldn't help but to laugh.  "And this means..."
          "That I have the flu and I'm getting my curse," she said rolling her eyes.
          Macen's face seemed to fall.  "Meggie...I hate to pry in the personal department, but when was the last time you had your," he paused.  "Curse?"
          "See the calendar on the wall in the kitchen?" She asked pointing towards the kitchen.
          "Yes."
          "Get up and look at it.  I mark the first day on the calendar with an x to help me predict the month after," she explained.  He flipped the calendar back to July...then June...then May...and then April.  "What are you doing?  Getting it all memorized so you can predict when to avoid me?"
          "Meg," he whispered.  "The last time you had one was in April.  The middle of April.  Which means that..."
          "What!  You're nuts," she shouted before he could finish.  She jumped up ran into the kitchen, almost tripping over her own feet, and looked herself.  She was shocked to find out that he was right.  With all the work that she had been doing she hadn't even noticed.  "I've skipped 3 months."  She looked up at him.  Her gray violet eyes were wide.  "What does that mean?"
          "I hate to tell you this but I think that we better get you a pregnancy test.  I don't like the idea of you carrying my evil twin's baby but...I think it's more likely that that is why you have been feeling so bad."  He said, wrapping his arms around her.  She started to cry.



          She hated doctor's offices.  They always reminded her of needles, pain, and death. "We could have just gotten a home pregnancy test," she whispered to Macen.
          "They aren't very accurate," he said.  "This way we'll know for sure."
          "I'm too scared.  What if I am?  What am I suppose to do?"  Meghan questioned.
          "Meghan Quinn?" the nurse asked.  Meghan stood and walked up to the nurse.  The nurse led her back to an area with a waiting room.  "The bathroom is to your left.  Go in there and urinate into one of the plastic cups found above the toilet.  Write your name on the cover and put it in the turnstile found on the wall.  Then you can have a seat in the waiting room, here, and wait for the results," the nurse explained, pointing across the hall to the empty room with eight chairs.
          Meghan stepped into the bathroom and closed the door.  "You should have told me that I'd have to pee into a cup.  I would have drank some water."  She whispered to herself after the door was locked and no one could hear her.
          A while later she sat in the waiting room biting her nails.  She kept thinking that she wasn't ready for a baby and how she didn't want it to be Codie's.  But she loved children and knew she could never kill a life growing inside of her...if there was one.
          "Meghan Quinn?"  A nurse asked, standing in the doorway.
          She looked up.  "Yes?"
          "Your pregnancy test came back positive.  So when you leave today make another appointment for your first prenatal visit."  The nurse handed her a slip and then said, "Congratulations."
          Meghan sat there for a second, numb.  She looked down at the little slip of paper the nurse had handed her for a good couple minutes.  Then stood and walked out to the appointment desk.  Her next appointment was made for the following week.
          "Meggie, what did the test come back as?" Macen asked.
          She looked at him and he could see the tears forming in her eyes.  "Positive," she whispered.
          He walked her to the car.



     He drove her to a small restaurant where he requested a quiet corner booth.  "Why did you drag me here?" she asked as they sat down.
          "We need to talk."
          "Talk about what?" she whispered sliding into the corner.   She put a hand to her nauseated belly.
          "About you, the baby," Macen paused and handed Meghan a menu.  "Me."
          Meghan rested the menu on the table in front of her and studied her surroundings.  The cafe had a cozy family atmosphere.  It was soft, warm, and inviting.  Her eyes were drawn from table to table.  Families, business meetings, dates all gathered in the friendly little restaurant.  Her gaze continued around the room until it finally stopping at Macen's blue gaze.  She looked into his eyes and saw love...and fear.
          "What about us?" she asked.
          "Well," he began, nervously running his fingers through his hair.  "I've been thinking.  You're pregnant."
          "So I've been told," Meghan commented dryly.
          "Don't," he said.  He was nervous enough.  He didn't need her being sarcastic.  He was having feelings that he'd never felt before.  There was only one way he knew to explain how he felt for her.  "You're pregnant.  My brother is responsible."
          "So?"
          "My twin brother.  Identical twin brother, and...."
          "What does that have to do with us?"  Meghan interrupted.  "You're nothing like..."
          "Would you let me finish?" He interrupted.  He ran his hand through his brown hair again.  She was watching him so intently and it was making him so much more nervous.  "He's my twin.  We have the same genes."  Macen paused.  He took a deep breath.  He looked directly into Meghan's eyes.  "Let me be the baby's father."
          Her eyes grew wide.  "You...what...the father...I...I...” She closed her mouth.  Her mind was racing and thoughts were blending into one another.
          "The way I see it, we have a nice relationship starting between us despite the fact of what my brother did...and I'm sure you think of it every time you look at me.  Codie has done this before.  He wouldn't be a good father and I would.  I may not be the best choice but at least this way it can never be proven differently.  And if our relationship doesn't work...I will not abandon this child.  The baby will be mine heart and soul.  I'm not doing this because I feel that I have to either.  I am doing this because I want to.  Ever since I first saw you those many months ago...my heart has only wanted you, I was just too shy to tell you.  I just didn't know how to explain it.  Now I do."  He paused and looked down at his hands then reached up and ran them through his hair.  Then he reached over and took her hand in his, softly stroking her soft skin.  "I'm trying to say that I love you, Meggie.  I have never felt like this for anyone else.  If you don't feel the same...let me know."  He took a deep breath and stroked the hand he held in his softly.  "Honey, if you feel even a little of what I feel in my heart and soul, then I think we should give this a chance.  I think we could at least try to make this work."  He looked at her waiting for a reaction, but the waitress came to take their orders. 
          "Everything is happening so fast."  She whispered, after the waitress had walked away.  "Macen...I don't know what to say,” she paused.  "I don't know what I can say right now."  Her heart was racing so fast.  It felt like it would either burst or suddenly stop completely. "This whole year has been so bad."
          Macen reached across the table and touched her other hand and drew both of her hands together.  Then he saw the tears building up.  "Do you want to tell me about it?"
          She looked into his eyes and saw the concern that he felt.  Along with the love.  He did love her, she realized.  She lowered her eyes as she began.  "My father died from the results of a car crash in early January."  She began.  "He died almost exactly a year after my mother."
          "Meggie, I'm sorry."
          "She died after giving birth to my last sister.  The baby survived only a few hours after my mom.  Throughout my life I have lost 10 brothers and sisters.  4 before me, 6 after.  The only one who survived past a few months was my brother.  He was born a few weeks before my seventh birthday.  Brandon lived until the Christmas after his fourth birthday.  She had three other pregnancies after Brandon.  Two while Brandon was alive.  The last one, though, is what killed her.  She developed severe Eclampsia and she died, as several of her organs failed her, while the baby entered the world.
          "My father was hit by a drunk driver head on.  He died in the hospital shortly after.  He made one of the nurses write me a note...saying..." she paused. "That he loved me.  He died before I got there.
          "The rest of it you pretty much know," she said as a single tear broke free and ran quickly down her cheek.

          "I won't ever leave you.  Meggie, unless you want me to," he whispered.  "I swear."  He took her hand and brought it up to his mouth placing a kiss on her knuckles.  "Marry me, Meggie.  Marry me and give this," he paused.  "Us, a chance."

McCrady Manor: Blood Curse - Prologue


 PROLOGUE

          The woman pushed her long silver hair behind bent shoulders, then lit the row of small candles lining the overhang of her old roll top desk.  She sat gracefully, gently spreading the white lace nightgown across her knees.  Flickering light and shadows played across the desk as she coaxed open the top and lit the large candle sitting in its left side. 
          She felt for the catch hidden in the desk's intricate hand-carved pattern of Celtic knots and crosses with delicate fingertips.  Finding it, she pressed firmly and released the door hidden in the carvings.  She reached into the opening beneath the desk's writing surface and pulled out a large leather-bound book in which she had painstakingly recorded memories since the age of seventeen.  Seventy-one years later, she was still writing in the same book, at the same desk, in the same room.  The distinct smells of floral and leather, pages as crisp as during her teen years, recalled her innocence and youth.  Now the book was almost full, she herself nearly finished, and it held more secrets than innocence. 
          Slowly she paged through the volume, stopping here and there to read a page, an entry, a memory.  It was nearing completion, only a few pages remaining blank, but there were still things that needed to be recorded.  Most of what she knew had been set down over the years; yet there was more to be told, more she wanted to say.  So much more that needed to be revealed to the one who would someday find it.  She had to finish quickly for she knew her time was coming soon.  She didn't know exactly when, but she knew it was near.  She wasn't worried, for her life had been long and well lived and her nephew was near eighteen and well able to care for himself.
          She indulged in thoughts of him for a moment.  So young, yet he was already so in love with the woman who would become his other half.  His angelic voice and firm determination would bring him success.  He would bring home the three; the ones that they had chosen to give up, the three that they tried to save.  It didn't work, though none knew except for her.  She couldn't bear to tell anyone that the curse was still there, longing for the life that it needed to steal, lingering in the shadows and exploiting the dark.  There were few left to tell, for everyone else was gone while she remained, though only for a while longer.  Her nephew, the three children that had been given up and the one taken away would need to know.  She didn't know if those four children were healthy or even alive, though she felt it true.  A tear slid from her eye, trailing down her aged cheek. She let it fall and soak into her nightshirt. 

          Picking up the pen, she began to write her last thoughts in the final pages of the book.  Evening twilight and the glow of the full moon spilled through the tower window, augmenting the candlelight.  She gazed up at the moon for a moment and thought of her Moon, her lost Moon.   Her Moon would find the book.  She had seen it, in a dream.       

Short Story: Hall of Life Choices (©1996)


The Hall of Life Choices

 I float down the dimly lit hall, a large decision ahead of me.  It is time for me to choose who I am.  It is time for me to be.  You see, I am about to be born. 

As I near the first door His words echo around me.  "After you pass a life, you cannot return to it.  You must choose...quickly.  You must decided on the certain thing you will know once the door is opened."

The first door to my right opens and before me I see a couple.  A man and wife, both in their mid-thirties.  She sits in a rocking chair, rocking back and forth.  Her dark hair is short and frames her face.  Her blue eyes are watching the man carefully.  He is pacing the hospital waiting room.  He wants this to be over with.  He raises his hands and rakes them through his light brown hair.  His brown eyes darting from the window to her large stomach. 

I would be a boy.  I'd be given the name Kristopher Damen.  I'd be born with dark hair and eyes.  My first word would be "funny."  I would be one of many children, four would follow close behind me.  I would play soccer and be in the school band playing drums.  I'd become a lawyer and marry at the young age of nineteen.

The man, a factory worker.  The woman, a teacher.  He'll start drinking in a few years.  Then she'll start "falling down stairs."

I close the door and move on.

The next door to my left opens.  Inside is a young girl of eighteen.  Her long red hair falls halfway down her back in curls.  She has sad smoky gray eyes.

When she had decided to sleep with her boyfriend, the man she thought she loved....and did, dearly, in a way....she had no idea that a baby would be the outcome.  The minute her boyfriend found out she was pregnant, he left her with the short phrase.  "It won't work with a baby."

I'd be born a girl, the spitting image of the teenager.  She'll name me Breanna Leigh.  My first word would be "flower" and I would be the light of my mother's eyes.  She'll love me with all her heart.

Once I get old enough I will help with the shop my mother will open in a few years, and later take the business over.  We'd be the best of friends.  Life would be simple, but full of love, hope, and dreams that come true.

I know that if I close the door, I can't return to it.  It seems like such a wonderful life.  Though I am curious about what else there is for me.  I close the door and move on. 

The next door to my right opens.  I peer inside and see a woman laying on a hospital bed. 

 Many different monitors are connected to her body.  She is dying, but determined to bring her baby into the world first.  The man sitting next to her has tears running down his face.  He still prays that God not take his wife, but if He does, he'll love that baby with his all.  He'll give her everything she could dream of. 

I'd be born early and be in the hospital for a few weeks, but I'd survive.  The woman, on the other hand, would die shortly after the doctors remove me from her belly.

I'd be given the name Jessalyn Faith.  I’d have a gift, a natural artist like my mother.  I'd have flowing blonde hair and haunting violet eyes, like my mom.  I'd be a good student and a singer in the church choir.

My father would take good care of me and love me with all his heart.  He'd remarry in five years to a nice woman whom would give him more children.

The story is too sad.  I have to move on.  I close the door.  

The next door to my left opens.  I look inside to find a dark haired woman huge with the life inside her.  She wears an elegant red silk gown.  Her face red with anger.  Her mouth moves quickly forming words.  She is mad because she had gone into labor in the middle of an opera she was attending.  The man sat there listening to her ranting.  His head hung down, yet he looked calm, as if he were use to her outbursts of madness.

They think that they are having a boy, but they will get a surprise when they receive a girl.  I'd be given the name Alexandra Hope.  I'd have black hair, like my mother, and blue eyes, like my father.  I'd do well in school because it would be expected of me.  I'd be popular since I would be one of the richest girls in school.

My mother would only see me when it is convenient.  At the age of seven I'd be sent away to boarding school where I would spend my childhood and grow into an adult.  My two older sisters would be there with me, and my younger brother would be across the lake from us.  
No one in this family is happy.  Not one...

I close the door and move on.

The next door opens and I peer in.  I see a woman who has a lot of love in her heart.  Love for the baby she is about to bring into the world and for the man who helped make the baby.  He's out of the picture right now.

I'd be born a boy.  She'd name me James Conlin, after my father.  The man who would soon reenter my life.  He'll come see me after I'm born, and bring my mom flowers and an apology.  I'd be a musician.  Given the talent of voice.  It would be called "The voice from Heaven."  God's gift to me.

I feel that there is still something better for me, so I close the door and move on.

The next door to my left opens.  Inside I see darkness.  A haunting ebony.  The only light comes from above the woman standing in the back of the room.  I can barely see her.  Then I hear her speak, her words, soft music to me.  "I know that you can't understand this, but it's really the only choice I have.  I can't raise you because I'm afraid I'll abuse you like I was."  She says as she rubs her rounded belly.  "I will make sure that you go to a wonderful family and that they will love you like nothing else.  They can give you things that I cannot.  But you will always be in my heart and not a day will go by that I won't think of you, my little baby."

All I know is that I'd be born a girl and given up for adoption.  Nothing else comes to me.
This isn't the life I want.  I move after closing the door.

There are two doors left at the end of the hall.  The door to my left opens first and I look in.  I see a woman and a man.  She is a rich woman in money.  The man, on the other hand, is rich in love.  He will love his baby, she will not.  There is jealousy in her brown eyes.  She already knows that he never loved her, only used her to get the baby he wanted.

I'd be a boy born into money and lies.  Both my mother and father will use me to get to the other.  Already I can't stand it....

I close the door with a slam.

The last door is before me.  I am afraid to open it.  I'm afraid that I will receive the worst life yet to see.  I'm afraid...

The door opens and before me I see a loving couple expecting their first child.  They are excited and can't wait to hold the screaming baby in their arms.  The doctors had informed them, though, that there was a complication.  My heart is underdeveloped.  I may not survive....

I'll be born a girl, with the name Kirsten Eve.  I will live... at least to early childhood.  I cannot see past that.  My parents will love and support me through operations and a transplant.  They won't want me to die, but if that should happen they will be grateful for the time they had to love me and all the wonderful memories that will fondly be remembered.

I accept...this is my life...the life I accept.

A white light appears at the other end of the hall, I turn and run to it.  The closer I get the more I forget about all that I saw through the door.  All the lives quickly disappear from my mind....including the one I accepted.  Will I be a boy or a girl?  Will I have two parents or just one?  Will I like my life?  Will I be loved?  Will I be born okay...


The light is all around me but I cannot see.  I'm cold and feel wet.  Something sharp and hard touches me.  Something else is put into my mouth and touches the back of my throat.  Someone yelled, "It's a girl!"

That's it, I really don't like this!  I take a deep breath and make a shrilling sound that scares me but the sound keeps coming.  I start to move whatever I can.  Someone help me.  Someone... I'm being lowered onto something.... or should I say someone.  My mother.  She holds me close to her.  I can smell her.  She checks for ten fingers and ten toes.  A small laugh passes her lips.  "She's beautiful," she whispered close to my ear.  

"Yes, she is," a deep voice agrees.  Then I feel a set of lips kiss my forehead.  Is that you Dad?

I realized that I stopped making that sound.  I feel safe and happy.  I know whatever happens, I'll be okay. 

© 1996 - ANNISSA Y,   (MoonNStarMommy@gmail.com)
DO NOT SHARE WITHOUT PERMISSION FROM THE ABOVE PERSON!!  
This is copyrighted.

Article: Surviving Special Needs (©2011)

Surviving Special Needs

By Annissa Yahnke  © 2011

It’s funny, some days, how people perceive you.  Some days, people look at you like you gave birth to a monster, and others, people feel the need to tell you how strong you are.   What they don’t understand is being a parent of a child with special needs has nothing to do with strength.

            I personally dislike the phrase “special needs.”  Every person has a few special needs, a certain type of bottled water they prefer, the need to feel superior, or just those who enjoy not being noticed.   They are all special needs an individual has to cope with feeling comfortable.   My children, they are unique!

            My middle two boys are my medical miracles.  I have one child born with a rare disorder called Mosaic Trisomy 16, and was only one pound twelve ounces when he was born.  The Doctors, I was told later, pretty much had no hope of him having any quality of life.  However, he is 9 years old now and proved them all wrong.  Does he have hurdles?  Of course he does, but nothing like they tried to make me believe he would.  Then my 3 year old came along and he has what seems like a never ending list of medical stuff going on, from Autism, to missing part of his brain, to having a type of dwarfism, and more.  The thing I hear the most:

YOU ARE SO STRONG!

            Yeah, not so much!  It has nothing to do with my strength.  It has more to do with supporting my children and being there for them.  Doing everything that needs to be done to make sure they have a good life.  Having a wonderful support system, and finding outlets for myself and my family to create a type of normality.   Most of all, it comes right down to love.  LOVE is the key to it all, you’ll do anything for love.

            Most parents of kids with unique issues would give anything to trade places with them, to protect them from the pain, and let them live in the innocence that most children get to experience in whole.   Most of us don’t break down until we’re behind closed doors, because we don’t want our children to see how much it affects us, because it’s not about us.  All parents just want to protect their children.   Unfortunately, those of us who have unique kids, we have to sit back and watch them go through things no child should have to.  We have to be their biggest cheerleader, their support, their parent, their friend, and sometimes their nurse.

            So what about us parents?  How can we survive all this and not just fall apart.  It’s all about a few key things.
•         Trusted Doctors
•         Wide Support System of Family & Friends
•         Taking some ME Time.

And when one of those things isn't in place, everything just feels off balance, so it is important to find that balance.

            If you don’t like your doctor, keep looking!  We have gone through a few that we didn’t like, but for the most part, we have found a lot of wonderful people in the medical field.  Having that support system is very important.  Family, Friends, Church, even strangers will come up and offer help, there is nothing wrong with taking it!  It is sometimes hard to do, but you will need to take it.  Practice saying YES, instead of NO … followed with “we are doing okay.”   It’s okay, to not be okay!  Finally, finding some time for yourself is usually the hardest.  I know I’ve gone days where I don’t eat and it suddenly dawns on me when I’m not feeling well at the end of the day.  It’s hard to take time for us when our children needs us so much.  Read a book, take a bath, play on Facebook, find something that is selfish and just for you, for at least twenty minutes every day.  Even if it’s after your kids go to bed, and making yourself take the time before you go to bed.

            The last thing I suggest is starting a blog.  It may not be for everyone, but I suggest it mostly so you can get out some of those pent up feelings that you don’t want to let out, because it’s not good to hold that stuff in.  It can be a private blog, for just your eyes, or a very public one where you share it with family and friends to keep them updated.  If writing is not your thing, that’s fine.   Just do it for yourself, most of you will find it therapeutic.  Who cares if no one but you reads it, you aren’t doing it for readers, you are doing it for yourself.   If you go public with it, it’s also a great way to get awareness out about your child’s medical issue.  Even if you go public, you don’t have to use names, or locations.  Give your family a cute nickname, call each of your kids something else.  Information you share is up to you.   And there are places of support for bloggers for Unique Families.   It’s always nice to be able to talk to other families who understand a little, or a lot, on what you and your family might be going through.

            Most of all, take time to capture memories with your children.  Photos, mementos, maybe even start a scrapbook.  It’s amazing how fast they grow up, how much they change, and it’s wonderful to sit back some nights and just take a walk down memory lane.

            Our children are everything to us.  It’s amazing how, once they are born, it’s not about us anymore, it’s all about them.

Wednesday, July 9, 2014

Article: Against The Odds (©2005)

Against the Odds

            Pregnancy is supposed to be filled with joys and happiness.  You are supposed to go buy cute little baby things.  Your friends and family are supposed to throw you a baby shower where you are given useful, and charming things.  You are supposed to complain about all those horrible pregnancy symptoms, marvel in first kicks, and delight in the sight of your child on ultrasound.  It's a time for plans and excitement.

            Not for terror and confusion.

            It's not supposed to be a time of unknowns, and such fear that you can't bear to create a beautiful nursery for your baby-to-be.   Where you wander around the baby departments at your local stores, pick up little things in pure want, and feel your heart sink as you place it back.  Having a million questions that can't be answered by anyone, including the best doctors, and simply not knowing what will be in store for your precious baby.  Being too scared to complain, because you are afraid that God will take your baby away.  No one can ease your fears, they only seem to add to it, with more questions and new worries.

            Welcome to the world of a rare genetic disorder called Mosaic Trisomy 16.  Countless families have stepped into these shoes, and yet there is still only as much known about the disorder as there was ten years ago.


            What is Mosaic Trisomy 16?   A Trisomy is when there is three of the same chromosome, instead of two, in each cell..  Mosaic means that the extra chromosome is not in all of the cells, but only in a select number, or pieces.  16 is the chromosome number affected.  

This is an extremely rare genetic disorder.  If a child had Trisomy 16, meaning all cells were affected, they would die in utero, probably before the first trimester is over.  It is believed to be one of the most common reason's why some babies are miscarried.  There are also several other Trisomy disorders not only affecting the 16th chromosome group, but many of the other 23 groups of chromosomes.  Some of the more common ones have names, Trisomy 21 is Down's Syndrome, and probably the most common Trisomy there is.  Trisomy 18 is Edward's Syndrome, and Trisomy 13 is Patau Syndrome.  It is commonly believed that any child with a Trisomy will have no quality of life, but that is simply not the case.  A lot of children who survive pregnancy, birth, and infancy with a Trisomy have problems, but not all have the worst-case scenario the doctors and genetic teams would like for you to believe.  Some of these children prove those disbelievers completely wrong, and you would never know there was a thing wrong with them.  

            In the instance of Mosaic Trisomy 16, or as those who deal with it on a daily basis call it, MT16, there are no known absolute "this is how your child will be" cases.  Each child born with MT16 is different and has varying medical problems and conditions.  Some of the more common things are; Intrauterine Growth Retardation (IUGR), Prematurity, Two-Vessel Umbilical cord (they usually have 3 vessels), Congenital Heart Defects, and a lot of the boys have needed Hypospadias Corrections.   The other problems are too far and wide a list to share.  Each case, as each child, are different.  As is each story.


            Our story started in 2001.  Five years of secondary infertility and several miscarriages after our first child my doctor offered the possible solution of a common fertility drug.  Clomid is commonly used to help with ovulation difficulties.  On our third month of this medication, and when we least expected it, I finally conceived, on my birthday.  Only a few days later I went into the office for a routine blood test, knowing it would be like all the rest, a big fat negative.  Instead, I was surprised and shocked into tears with a positive result.   Completely disbelieving, I took a home pregnancy test the following Monday, and was still shocked and amazed that it had too, come back positive.  We had an early ultrasound done the following week, and saw nothing.  I was worried there, a little, but somehow I knew, this time was different.  At least that's what I wanted to believe.

            On July 26th, we went in for our second ultrasound.  Still only a few weeks along, we were looking for that baby, and the relief of seeing a heartbeat.  When the ultrasound tech began, we saw a little line and a little beating bubble connected to it.  That was our baby, and the heartbeat.  We were given the gift of actually hearing the baby's heartbeat through the ultrasound machine.  The heart rate was 107.  Not many people can say that they heard their baby's heartbeat at 6 weeks gestation!  It was a gift, a miracle, and I knew right then and there, if nothing else, this baby was a fighter!!  Our due date was March 17th  2002, St. Patrick's Day.

            When we had our 3rd ultrasound the following month, we were blessed by hearing the baby's heartbeat again.  The little heart was beating at a rate of 180!  We were so excited, this time we could make out a little head, body, arms and legs!  Then the ultrasound tech made a comment about how the due date based on measurements was March 22nd.   I know five days isn't much, but this struck me as odd.  I asked my OB about it, and he just said not to worry about it.  I tried to brush it off, but it seemed to stick in the back of my mind.

            In September I wasn't feeling well and had our first official OB appointment.  The baby's heartbeat was detected with the Doppler, and was beating at a rate of 158.  Everything seemed fine and we were past that point where I was finally able to really get excited.  We went ahead and scheduled the Alpha Fetal Protein (AFP, Triple Screen) test for the following week.  I had one done with our oldest child and expected nothing but a normal result with this one too.

            In October I began feeling movement.   This was one of the aspects of pregnancy I loved!  On the 9th we went in for my routine OB visit.  We found out the AFP had come back abnormal, giving off possibilities of both Downs Syndrome and Spina Bifida.  Between my Doctor and my husband, they talked me into getting an amino.   So on the 19th I went in, and as terrified as I was, it was better then I had expected.  I still never wanted to do it again, and was a bit traumatized due to my own feelings on needles.  The results came back on October 30th and we went into the office to discuss them.  My mom, husband, our oldest son, and I were in a small little exam room when the doctor came in.  He told us, "It's not Downs or Spina Bifida.   The baby has a rare genetic disorder called Mosaic Trisomy 16."   Everything from then on fell on half deaf ears, up until he said, "Oh and by the way, it's a boy!"   All I could think was, it's a boy.  Our new little boy.   His name had been picked out for a while, he would be named Noah Alexander.  It seemed like a nice strong name, and in this case, this baby needed every ounce of help he could get!

            A genetics appointment was made quickly in Marshfield, about two hours from home.  When we got home after making the appointment, first thing I did was jump on the internet and try to look up any information on Mosaic Trisomy 16.  We couldn't find anything, until one thing popped up, a site called Disorders of Chromosome 16, or better known as DOC16.   A woman, named Karen, who a little over 6 years before had been in my shoes, with her daughter Shayna, contacted me.  She's the founder of the organization and the whole goal was to make sure that other families had information to go on, other then the worst-case scenarios given by the Doctors.   She became an angel on earth to me, because she provided me with as much information as she could to help us learn more about MT16.  I read all the stories on the website, I wanted all the info, good or bad.  I wanted to be prepared, and most importantly, I wanted our 5 year old son Calahan to be prepared.  We learned that no matter when his birth occurred (early or full term) he would be tiny, that was a very big commonality between all the cases.  We found out he would probably have some sort of heart issues, and possibly some umbilical cord problems but other then that, the list was long and wide of possible complications to both pregnancy and baby.  It was overwhelming and scary.  But I managed to hold onto all the good in the stories too.  These babies were making it, past pregnancy, past infancy, into childhood.  They were smart, they were reaching their milestones, and they were beautiful.

            We went to Marshfield a few short days after the diagnosis was revealed.  I was close to 21 weeks, over half way through the pregnancy, and only a few weeks away from a "viable" pregnancy if he were to be born then.  First thing we ended up doing was getting a Level II ultrasound, they pushed and poked and let me tell you, that was the most painful ultrasound of my life.  I got a few pictures out of the deal.  Then we went down to the genetics department after the 2 hour poking session and was escorted to a conference room.  They started out by telling us how this happens.  While the egg is splitting two of the same chromosome goes into one and two go into another but in this case, three go into one egg and one goes into the other the egg with one cell dies off, but the one with three continues to split and multiply.  It wasn't anything my husband and I could have prevented, or caused, it was just a fluke of nature.

            They went on, telling me how he would have no quality of life, would be mentally and physically delayed, would probably die in-utero or shortly after birth every possibly bad outcome was given to us, but not a single positive thing.  Then he said he had to give us the option to "interrupt the pregnancy."  It took me a moment.  I'd never heard it phrased like that before.  "Interrupt the Pregnancy."  I was half way through how could that even be an option.  It made me sick.  This was my child and this person was sitting there, across the table, giving me the option to terminate the life that was inside me.  The life I had fought over five long years for?  This miracle that my womb held?  MY MIRACLE?  He had the audacity to actually suggest it, especially after giving us every bad case scenario there was.  "That is not a possibility," I said after finally getting over the shock that he just suggested I kill my baby because his health wasn't perfect.  He then turned to my husband, and shocked me even more, by asking him how he felt about it.  "I feel the same way she does," he told him.  "The only way we'd do anything of that sort," he continued, "is if Noah could have better chances outside then inside."

            He finally asked if we had any questions, and I asked him how big we should expect Noah to be.  He told us that he would have low birth weight, even if he went full-term he would only be 4 to 6 pounds at birth, depending on how well he grew inside.  As things were going, he was going to be small, and I was thinking he'd be 4lbs at birth, that was the number I had in my head since finding out the news.  Our specific conditions inside had some problems.  The placenta was small, the fluid around him was low, and Noah was small for gestation.  Other then that, they didn't find anything wrong with his heart, or umbilical cord, but would give us no guarantees that there wouldn't be any present at birth. He told me that there would be physical and mental delays.  When I said "That's not necessarily true," as I knew from the information I had read off the website, he stressed the point that there would be.  Making me feel that he would not be convinced otherwise, it would happen.  I felt as if I left there, or went in there for that matter, knowing more then they did.

            In November, just a few days after my routine doctors appointment, we had a scare.  I lived in denial for four days.  I had been feeling Noah move, and then all of a sudden, for 4 days I didn't feel Noah move at all.  The first day I noticed but brushed it off.  The second day I tried not to notice.  The third day I was in denial and prayed he was moving around while I was sleeping.  The fourth day I was petrified, but too must so to make the call.  Though by the fifth day, I prayed and prayed and then called the doctor.  They told me to come in immediately, and I did.  The second they put the little microphone to my belly and we heard his heartbeat, found out all was fine, the little stinker decided to become a wiggle worm and didn't stop moving all day.  He had several days to make up for you know.  He managed to give his mother a heart attack though.

            Just a few short days later, on November 17th, the contractions started, and would continue through the rest of the pregnancy, and with-in a month it would start being very noticeable, to the point where the contractions would hurt.

December 7th I had my 6th ultrasound.  His heartbeat was 167, the determined that the placenta was smaller then what it should be, the fluid was low, and Noah had asymmetrical IUGR meaning that his brain was getting the most nutrients, then going to his organs, and then to his extremities.  He weighed, approximately, 15 oz.  Now to put this into perspective, a baby at 26 weeks gestation, should be an estimated weight of 2 lbs.

January is when things calmed down, at first, and then the tiny little holes in that dam, broke.  My blood pressure increased, to the danger point. I went in on January 28th for a Non-stress test, where they measure contractions, movement, and heartbeat.  During this NST, they lost Noah's heartbeat, which wasn't unusual, but this time, it was a very obvious heart deceleration, and not just the little monkey moving around too much.  This was a sign that the conditions on the inside, were starting to become unhealthy.  On January 29th,, I went in for another NST,  and right away my blood pressure was so high, and they detected protein levels in my urine, and that right there, put me in full diagnosis of a pregnancy complication called Pre-eclampsia, which I had also experienced with my first pregnancy.  Not only that, but during the actually NST Noah had several heart deceleration.  Before they even let me leave from the office, they gave me the first steroid shot to help mature Noah's lungs, unknowing if he would have to be delivered that very day, or not.  I had instructions to go straight to the hospital, no stops anywhere, only there and that was it.

I got there, and once I was admitted and hooked up to every machine they could possibly think of, I was barely allowed to get up to use the bathroom.  I was teased with food, and had it taken away because they weren't sure if they would have to perform an emergency c-section.  Here I was, 33 weeks pregnant, scared to death, and the end of this pregnancy was looming above us.  They gave me 2 other steroid shots to help mature Noah's lungs.  Doing an amnio on January 31st, to check his lung maturity.  Noah on the other hand, thought the needle was a toy and tried to play with it to which my doctor said "Bad Baby" and the fluid came out a pale yellow, meaning bilirubin was in the fluid. My pre-eclampsia was getting worse, and Noah's heart deceleration were getting worse every sign said, take him out now.  The following morning, on February 1st, 2002, my doctor came into my hospital room and told me he was no longer giving me a choice about going to the level three NICU hospital two hours away, I was going, but they wouldn't take the baby until the following day.

I traveled by ambulance to Marshfield, Wisconsin, to St. Joseph Hospital.  Admitted and put into a room where I was promptly told I could have nothing to eat or drink, would be getting more blood work done and another ultrasound, my 10th.  Then they would determine if they would take Noah now, or later.  After doing so, the team came in and told us, they were taking him now.  He had to come out.

They prepared me quickly shaved me, put the horrible catheter in.  By about 3:15pm I was in the operating room (I had gotten there about noon!)   They gave me a spinal.  Things went quickly from there... I was trying so hard not to cry.  Trying not to think about Noah, but what else is there to think about.  The ONLY thing I had hoped for, was to hear him cry.  I just wanted to hear him cry and know he was ok!!  Next thing I knew everyone is yelling "3:45, 3:45" I didn't know what was going on!  Only took us a few minutes to figure out Noah had been born, no one told us.  We looked over to the room where he had been taken, a room off to the side of the OR, closed off but with a window of it's own...  and there were a bunch of doctors and people in there.  We didn't even see him... hadn't even known he was born.  No one said "It's a boy" or anything.........  and that's one of those things that still kills me to this day.  We just wanted to know if he was ok, and didn't know anything.

I was taken back to my room... and we knew nothing.   It took a little while for people to start coming in.  First thing out of everyone's mouth was what a cutie he was.  We were told of specific little problems...  micro preemie weight  - told to us in grams (that means what?) ...  looks good, on the vent - didn't want him to even try to breath so they didn't let him....  had 3 little holes in his heart...  and a few other things...  Said we (meaning everyone but me) could go see him in about 20 minutes.   4 hours later, Noah's Dad, his Dad's mom, my mom and big brother Calahan finally got in to see him, (after 7pm).  Came back showing me one of his diapers, and some video...  and told me he was 1lb 12.2oz and 13 3/4 inches.   (At a normal 33 week pregnancy, a baby would be around 4lbs and 15 inches.)  They gave me some Polaroid's too.  My husband and Calahan left shortly after, leaving my Mom with me.  We played Uno for awhile waiting for my feeling to come back in my legs.  Finally it came back enough that I could move my feet and legs - and so they told me I could go see Noah now... it was around 9:20pm.   I tried so hard not to cry when I first saw him.  He was SO TINY... just unbelievable.....  I couldn't believe it....  just couldn't.   "The first 24 hours will tell the difference" I was told..... I had no doubt, he was here, HE WOULD MAKE IT.

I pushed myself the morning after he was born, I wanted to get up and do it NOW because I wanted to go see him.  I almost fainted.   Came so close I had tunnel vision and couldn't hear a thing.  But I did it..... and I was up and walking around the rest of the day.  Back and forth to the NICU... Noah did great though!!  He came off the vent about 40 hours after he had been born......  the nurses would walk past his bed and stop dead, wondering why this 1 lb baby was OFF the vent.   And after a week, he was basically termed as a "feeder, grower" ...  

Noah had several problems in the NICU... he had hyperbilirubinsim (his jaundice would keep coming back), he had his heart murmurs, he had some bradys (basically heart decelerations) - mostly the couple weeks before coming home - some of them were not "true" bradys...   he had some fluid on his brain they were concerned about, ended up putting me in a panic - but we were suspicious because our friends baby had the same thing, what are the odds of that?  It ended up being a temporary ultrasound technician and the normal one who deals with the NICU babies said it was a variation of normal, and they were fine....  they saw his right kidney was enlarged (I don't know if that has gotten better or not) ...  he had umbilical and groin hernias...  and a hypospadias (his urinary tract went to the underside of his penis instead of the tip)...  and he went through other tests for his MT16.   We found out the placenta was 100% T16, the blood was 0% T16, they did a skin graph on him, and his skin cells were 30% T16 which is what they found in the amniotic fluid was 30% from the amnio.   We are lucky to have him.  

We were there 6 1/2 long weeks, and he came home the day after his due date.   He came home at 3lb 10oz!  Everyone asks me if I was freaked out taking him home then, but I wasn't at all. I had been taking care of him while he was in the NICU - by the time he was 3 weeks old I was doing a lot of what the nurses did.  I was there between 8 and 9am and didn't leave until 10 pm usually.  A week after coming home he ended up back in the NICU for 5 days, due to a cold.  That was heartbreaking.  We had just left and there we were again.

Noah has been in the hospital only a few times since, and is doing better then anyone could have or would have expected.  He's smart and although he is mildly delayed, mostly just due to his small size, he is doing so well.  You wouldn't know looking at him, that anything was wrong with him.  So much for that death sentence, that "no quality of life" warning, we were given when he was only 4 months inside.  Although anything can happen at any time, and there is always the chance that something could drastically go wrong, it's a fear we have to live with, and not dwell on.  This disorder can affect any organ, and you can't test a child's organs for piece of mind.  I made a decision, a long time ago when I was first told about Noah's disorder, that I would accept any time I was given with him, even if it was just a few short moments.  That is the vow I live by everyday.  That is what I concentrate on.  Making the life of my child, the best it can be.

I hold a miracle in my arms everyday because I put my trust in God, and not in the medical professional I was suppose to trust giving me information.  I am thankful and know that it was technology and many many doctors and nurses who did their jobs so well that kept him alive, doing what they needed to do to get him here safe, and home healthy.  Most of all, I thank God, everyday, for the miracle I hold in my arms.  I cherish every good moment, and every bad.  I never gave up on him, and I never will.

Photography: Pink & White